On April 17, 2025, the world celebrates World Haemophilia Day 2025, a healthcare event aimed at increasing awareness of hemophilia and associated bleeding diseases. The purpose of the event is to advocate for improved care, treatment, and management for individuals afflicted with the uncommon, hereditary hemorrhagic illness. Because haemophilia is linked to the X chromosome, it is more prevalent in men. “Access for All: Women and Girls Bleed Too,” the 2025 theme, draws attention to the frequently disregarded needs of women and girls with bleeding disorders.
Meaning of World Haemophilia Day 2025
- An uncommon genetic condition called haemophilia impairs blood coagulation, causing even slight wounds to bleed for an extended time.
- The severity might vary, but it is usually born. Despite being more prevalent in men, women and girls may also be impacted, frequently going untreated or receiving the wrong diagnosis.
- Hemophilia Awareness Day was established on April 17 by the World Federation of Haemophilia (WHF) to generate money for those who are untreated, improve diagnosis, and increase access to care.
- Additionally, the day offers a chance to encourage sufferers and talk about the illness with loved ones.
- Every element of life is impacted by hemophilia, including daily chores and physical activity.
- Although men have traditionally received more attention, women and girls with bleeding problems also have particular difficulties that warrant consideration.
History of World Haemophilia Day 2025
- To commemorate the birthday of its founder, Frank Schnabel, the World Federation of Haemophilia (WFH) created World Haemophilia Day in 1989.
- When men started dying from tiny wounds brought on by bleeding in the tenth century, the disease-known as abulcasis-was identified.
- However, it was not healed because of technical limits. Aspirin, which thinned the blood and made the problem worse, was used to treat the ailment, which was common in royal families.
- In 1803, Philadelphia physician Dr. John Conrad Otto started researching “bleeders” and concluded that it was a genetic disease that boys inherited from their mothers.
- Haemophilia was divided into two categories in 1937 (A and B), but up to that point, no effective therapy had been developed.
- April 17 was designated as World Haemophilia Day to increase public awareness of the illness and inspire individuals to collect money for treatment for those who cannot afford it.
- Haemophilia was identified as a type A or B genetic condition in 1937 when Otto’s study revealed that the illness was inherited from mothers to sons.
- Effective therapy, however, had not yet been created.
- In conclusion, World Haemophilia Day was created in 1989 to increase awareness of the illness and commemorate the birthday of its creator, Frank Schnabel.
Theme of World Haemophilia Day 2025
“Access for All: Women and Girls Bleed Too” is the 2025 topic, and it calls on the international community to address the special needs of women and girls with bleeding disorders, such as underdiagnosis, insufficient treatment, ignorance, and effects on quality of life. Resolving these problems can enhance education, healthcare, and interpersonal connections.
Significance of World Haemophilia Day 2025
- The goal of World Hemophilia Day 2025 is to increase public awareness of hemophilia, a serious health concern that affects about 1 in 10,000 live births globally.
- Just 25% of the 4 lakh afflicted individuals in 2000 had access to proper care. A meta-analysis conducted in 2019 found that there are 11.25 lakh males with the hereditary bleeding disorder.
- The National Bleeding Disorders Foundation (NBDF) and the World Federation of Hemophilia (WFH) are spearheading initiatives to raise awareness of this year’s subject.
- The WFH’s emphasis on the needs of women and girls with bleeding disorders pleased Dawn Rotellini, Chief Operating Officer of NBDF.
- Only 15% of people worldwide have access to appropriate treatment for hemophilia, even in high-income countries.
- As a result, low- and middle-income countries have high rates of death and morbidity.
- The 31st year of World Haemophilia Day is being celebrated with events that encourage the public to assist policymakers and the government in improving hemophiliac sufferers’ treatment, prevention, and control of bleeding.
Celebration of World Haemophilia Day 2025
- Every year on April 17, World Haemophilia Day is observed to increase public awareness of the hereditary condition and associated bleeding diseases.
- Organizers plan events and awareness campaigns to educate the public, including staff members of health organizations.
- The primary problem with hemophilia is that many people with the condition frequently receive inadequate or no therapy at all.
- To support the day, monuments and sites in Australia and other countries switched to red nighttime lights in 2020.
- Groups from different states in India arrange a variety of activities, and the Indian Haemophilia Foundation, in collaboration with the Ministry of Health and Family Welfare, offers medical services and spreads knowledge about the condition.
Relevant Websites for World Haemophilia Day 2025
Apollo 24|7 App: https://www.apollo247.com/
Netmeds: https://www.netmeds.com/
Conclusion
World Hemophilia Day 2025 serves as a reminder that our healthcare systems shouldn’t discriminate against those with bleeding problems. The topic “Access for All: Women and Girls Bleed Too” advocates for everyone, regardless of gender, to have fair access to care, support, and treatment. Let’s collaborate to increase awareness, remove obstacles, and guarantee that everyone, particularly women and girls, has access to the care they need as April 17, 2025, draws near.
